Discussions in the meetings
- Dagmar explained the HIBA study into iodine levels during and after pregnancyand how we had already used the comments made at the January meeting about this study.
- We looked at the participant information sheet and the consent form for the study. Governors made a lot of really helpful suggestions about rewording the information sheet and the consent form. These have all been sent to the lead researcher before they submit the documents for ethics approval.
- Rosie talked about the new wave –and the pressing need for a new name for this, Governors came up with:
- BiB: Growing up or BiB Growing up
- BiB: Next Steps or BiB Next Steps
- Growing up in Bradford
- We have chosen BiB Growing up!
- They suggested a very friendly welcoming opening paragraph…. Stay on the journey with us….. Because of your participation this is what we have found out/done so far……
- And an emphasis on the fact that we have been collecting their routine data since 2007 and we have proved ourselves trustworthy with it and we would like to continue with that.
- They approved the idea of a consent form kept shorter by having a leaflet with extra information for those that want it
- We discussed the aims & objectives for the Family Festival and confirmed the dates: 29th & 30th October
- Governors made suggestions for age appropriate activities to include all the family
- Parents were very pleased with their photos being used in the newsletter and the ‘We are BiB’ booklet. Positive response to both publications generally
- Liz Firth advised that Sophia Buncy email@example.com
- is working with 8 mosques from the Khidmat Centre – to make them healthy mosques – suggested that Sally got in touch with her.
- We showed the amended child and parent info sheets for the schools assessments and parents were much happier with these – and that we had gone into schools twice to see groups of children from Y3,4,5 – to check their understanding of the sheet
- We agreed that for child deaths we would send a condolence card after 10 days but then there would be no correspondence for 6 months, certainly no study requests, even for other siblings
- We would still send birthday cards to siblings
- For maternal deaths we would send a card after 10 days and after 6 months a letter to the guardian asking if they would like the child to remain in the study – if they do we would arrange a home visit to explain the study and to get a new consent for the child or children
- Liz Andrews spoke about the new schools assessments starting in May 2016, aimed at all Y3 & Y4 children over a 2 year period. Liz explained the ‘opt-out’ consent process for a study of this size and the governors were satisfied with that method.Teachers & children will each receive their own information sheets and will be able to help parents who don’t read English well to understand their own information sheet. Governors suggested we add some visual symbols to the information sheet and gave more explanation of what the assessments show and how they help teachers.
- Governors were in favour of traditional bibs being given to parents of newborns in the new BiBBS cohort- rather than bandanas. They had all used and appreciated their BiB bibs!
- Ann described the new Iodine Study which is looking to recruit 300 women. This overlaps with the recruitment to BiBBS in the Better Start areas. Suggestion to discuss both studies at same time, (12 weeks pregnant) so that women don’t choose the iodine study and then decide not to do the BiBBs study when they hear about it at a later date. Questions from Governors about where bloods are being taken for this study – surgery, clinic, home?
- Sally introduced the idea of using faith settings to promote health messages, e.g. to promote physical activity for the family through madrassa and mosques. Is this possible? She and Ann had already met with the hospital Muslim chaplains who had worked on other successful health promotions in mosques. Governors discussed madrassa times and curriculum/time pressures during the week but they had suggestions for walking buses to madrassa and health interventions that could take place at a weekend, e.g. family walks or other activities in a local green space.
- It was a very positive discussion about this potential and exciting new strand of research in Bradford.
- Born in Bradford website – parents found it easy to use and to understand but we are continuing to add to it and to improve it
- The finished BIBBS participant information sheet leaflet – changes were discussed last time- was shown and approved
- Family Festival 2016 -Bradford College to be used as a potential venue? Ann to look round
- Nutshells – some are too complex and written from academic perspective- difficult for parents to understand. We discussed the possibility of animating them.
- Better Start Bradford merchandise – suggestions for potential merchandise to promote BIBBS – baby towels, changing mats, blankets, baby bags
- Josie gave a brief overview of the BIBBS (Born in Bradford’s Better Start) project. An outline of the study was summarised and mothers were informed of the purpose of the project.
- Recruitment starts in January, so all ethics linked to the study is to be approved by the end of the month.
- The patient Information sheet and Questionnaire were discussed and there were lots of suggestions for making them more parent friendly.
- We also discussed ways to raise awareness of the new cohort and the exciting projects on offer
- We discussed a possible venue for the next family festival
- All money raised from the sale of Ian Beesley’s chap books at the conference will go to help Syrian refugees in Bradford – as will funds raised at our next BiB coffee morning
- Looking for participants to help develop a tool in a PhD project looking at children who are overweight and obese
- A new project giving phones (used as camera’s) to schoolchildren
- MyBiB research testing
- Feedback on the BiB Family Festival
- Plans for the full sweep (2016)
- The PiP trial and how to improve its effectiveness
- Volunteers for the MyBiB site
- Updates on the BiB family Festival including whether we should have a board telling people to like us on facebook
- The Bradford Cathedral interfaith week
- Discussion of a recent Telegraph & Argus article as regards to birth defects.
- Information about the recommended levels of physical activity in adults and children.
- Updates on the BiB Family Festival.
- Discussion about the development of a ‘wiki’ book, that would allow BiB participants to access research data
- Plans to introduce a ‘parents evening’ event.
- Updates to the BiB Family Festival, including how parents can publicise the event.
- Introducing parents to the HELIX project (The Human Early-Life Exposome).
- How to involve parents in BiB research.
- Updates on the BiB Family Festival
- Pro’s and con’s of free school meals
- Physical activity recommendations for all ages from toddler to adults
- What stops parents walking their children to school
- How to make school environment such that it encourages physical activity
- Interesting ways to tell parents about the research findings
- BiB events happening in the rest of 2013
- The purpose of this group, the importance of the input from parents in shaping the study and the role of the 2 parent organisers for the group,
- We looked at the new Healthy Weight App and had a long discussion on how health professionals engage with families where the child is overweight/obese, 8 parents’ experiences of the studies so far, which were very positive.
- How we can reach new audiences; the use of Facebook, twitter and the website and the importance of the newsletters and birthday cards being posted to peoples’ homes.